Resources for Infant and pregnancy loss
Awareness and support
This list was curated from the resources available at
http://www.pregnancylossdirectory.com
https://www.verywellfamily.com
The March of Dimes is one of the most well-known and well-established organizations focusing on pregnancy health. March of Dimes has a lot of information on the causes and possible prevention of premature birth, a leading cause of infant death, and it is involved in numerous advocacy efforts to drive research into ways to prevent birth defects and infant death.
As a start, every woman who is pregnant should be aware of the risk factors for premature birth as well as the signs and symptoms of premature labor.
1st Breath - Provides education, advocacy, and public awareness of stillbirth in addition to assisting families and professionals dealing with the death of a baby.
Cuddle Cot Initiative - An in-room cooling unit that is the size of a small humidifier disguised inside of a Moses basket. Research has proven having a unit available to parents while they are in the hospital encourages families to spend time with their baby.
First Candle - Formed as a merger of several regional SIDS prevention and research organizations, First Candle's mission is now expanded to include stillbirth as well as other sudden, unexpected infant deaths. The organization aims to fund research and public campaigns to help every baby reach their first birthday.
Go Pink and Blue - International pregnancy and infant loss awareness campaign created to invite the world to support what used to be a silent topic.
We provide infant burial gowns to parents who had a pregnancy loss or infant loss. If you experienced a miscarriage or stillbirth, request your "angel gown".
Mattie's Memory - Assists people on a national level to obtain state-issued stillbirth certificates as well as to help them find local support.
Purposeful Gift - Increases awareness about neonatal organ, eye, tissue, and whole body donation and supporting families who are considering donation as an option.
Samuel's Lullaby - Creates baskets of comfort and hope for mommies who have lost their babies (FREE).
Share Pregnancy and Infant Loss Support - National organization serving 29 states. Offering support services to mothers, families, and professional support and education during and after the loss of a baby.
SIDS Network - A collaborative effort of individuals from across the United States and around the world that offers up-to-date information as well as support for those who have been touched by the tragedy of SIDS/OID.
A community of black women replacing silence with storytelling.
The Compassionate Friends (TCF) is not exclusively focused on pregnancy loss but focuses on providing support for bereaved families who are grieving the death of a child. The group does offer information and support for pregnancy loss of any kind.
The MISS Foundation focuses on crisis support and other aid to families grieving the loss of a child. The group is not exclusively focused on pregnancy loss but is involved in a lot of activities related to miscarriage and stillbirth awareness, such as the Missing Angels Bills that have been considered or passed in many U.S. states with the idea of granting parents the right to receive a state-issued certificate of stillbirth recognizing the loss of a baby to stillbirth.
The Center for Loss in Multiple Birth (CLIMB) offers support to parents who have lost babies in multiple pregnancies, including those who have lost all babies in the pregnancy as well as those who have lost one twin. The site offers fact sheets aimed at dads, grandparents, siblings, and survivors as well as information about research into this type of pregnancy loss.
Helping After Neonatal Death (HAND) is a California support group for late pregnancy loss and neonatal loss. Its website features fact sheets and information about local groups in northern California. The group also offers two in-person support groups as well as phone support for grieving parents.
Even if you are not a California native, the HAND website provides support, including letters addressed to parents, friends, and family, and even health care professionals who are facing the grief which accompanies stillbirth and neonatal death.
www.wendtcenter.org – they have individual, group and couples support for all types of grief and loss and useful info on their website
www.postpartumva.org/grief-and-loss
www.birthalliance.org/pregnancy-and-baby-loss-support.html
www.live-evermore.org/parent-grief-support-directory - this organization was founded by a former NICU family who lost a baby girl in the NICU
International Resources
The International Stillbirth Alliance (ISA) is a coalition of stillbirth awareness groups and organizations that work to promote stillbirth research and awareness of stillbirth. The group offers support resources for parents as well as information about ongoing research into stillbirth.
The Miscarriage Association is a UK-based support association that offers many resources to help families cope with miscarriage and to spread awareness of miscarriage. They use the general term miscarriage but include support for those who have had an ectopic pregnancy or molar pregnancy as well. The group has a network of support volunteers who can lend a listening ear
The miscarriage association also provides information to help people better understand everything from the tests done to look for a miscarriage, to information on "trying again" after your loss.
Sands stands for Stillbirth and Neonatal Death Support. This group is based in the UK, but Sands has chapters in countries around the world. The group offers support to all individuals affected by stillbirth or loss of a newborn infant, and its website includes information on local groups and advocacy opportunities.
Sands also recognizes the importance of bereavement care, which has, unfortunately, been addressed to a less degree than the symptoms and treatment of pregnancy loss.
The Ectopic Pregnancy Trust is a group sponsored by London's King College Hospital. The website has information on the causes and treatment of ectopic pregnancy, as well as support forums. The group supports research into early diagnosis of ectopic pregnancy and means of prevention.
The website (of course, easily accessible to those outside the UK) has abundant resources with information on a number of topics surrounding ectopic pregnancy. It even has information for dad's and ectopic pregnancy, recognizing the difficulties faced by those who are "so close but yet so far."
Tommy's functions as something of a UK-based March of Dimes equivalent. The group has information on how to have a healthy pregnancy and prevent any preventable stillbirths or preterm births. The group also supports research on miscarriage prevention and causes
Special Situations
Center for Loss in Multiple Births (CLIMB) - Provides parent-to-parent support for those who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood.
Loss of All in Multiple Birth Support (LAMBs) - Online group for parents who have endured the Loss of All in a Multiple Birth to share their stories and support each other.
Perinatal Hospice and Palliative Care - Provides information and support for parents who receive a prenatal diagnosis that indicates your baby likely will die before or after birth.
Pregnancy After Loss Support - Dedicated to helping mothers choose hope over fear while nurturing grief during a pregnancy after a previous loss.
RESOLVE - US National Infertility Association works to improve the lives of men and women living with infertility.
Still Mothers - Provides support and resources for families who have experienced the death of a baby (ies) and are living without a child to raise.
Twin-to-Twin Transfusion Syndrome Foundation - Provides immediate and lifesaving educational, emotional, and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome.
https://www.drugrehab.com/co-occurring-disorder/depression/ and https://www.drugrehab.com/guides/pregnancy/ The loss of a baby takes an enormous toll on the family, especially the mother. Often times, the grief and stress can lead to substance misuse. We are working to bring awareness to this issue and to be a resources for families facing substance misuse and mental health disorders.
alcoholrehabhelp.org/treatment/prevention/.
When dealing with greif, people process it in different ways, some unfortunately turn to alcohol as a source of relief. Please fdon'teel ashamed, you are not alone.
All content published on Alcohol Rehab Help is fact-based and original. It is all sourced from current scientific research, ensuring content is accurate, relevant, and up-to-date with current research and addiction terminology.
https://braincentertms.com/am-i-depressed-test/
According to the Census Bureau, more than one third of Americans have displayed clinical signs of anxiety, depression or both since the coronavirus pandemic began. Along with this, the lack of connection with therapists and mental health professionals has made it even harder on people who are struggling.
At the Brain Center TMS we’ve created a resource page where people can take a PHQ-9 depression test for self-evaluation. Our resource also provides insight on different types of depression and ways to treat it,
https://www.childbirthinjuries.com
The Birth Injury Center is dedicated to supporting anyone who has been affected by birth injuries, brain injuries, cerebral palsy, Erb’s palsy, and other developmental disabilities. We strive to provide answers and guidance to ensure that families receive the assistance that they need to help improve their overall quality of life.
Baby went to Heaven book